FORMERLY GENETIC SUPPORT COUNCIL WA (Inc)
The Genetic Support Council WA (GSCWA) is a not for profit organisation that acts as a peak body for genetic & rare disease support groups in Western Australia. The GSCWA fulfil the following roles:
Promote awareness of genetic & rare conditions in the community;
Encourage and support effective and efficient management and service delivery practices within genetic & rare disease support groups;
Assist in the greater participation of consumers in policy, planning, research and service delivery across the genetic services field;
Develop and contribute to policies of common concern to genetic & rare disease support groups and;
Provide genetic & rare disease support information, resources and referral services to individuals and genetic support groups;
To promote leadership and cooperation between non-government and community organisations within the genetic & rare disease services field; and
Act as a mentor for the genetic & rare disease support groups.
About Genetic Support Groups
The diagnosis of a genetic condition in a family member, particularly a child, places enormous stress on a family. Individuals and families may feel the need for personal support offering a specialised understanding of their particular condition. Genetic Support Groups provide this service and support.
What is a genetic condition?
A gene or chromosome fault can result in a genetic condition. Genes are the instructions that determine physical characteristics such as height, hair and eye colour, strength of our bones and the correct functioning of our bodies. Genes are located on chromosomes inside the cells of our bodies. A genetic condition can run in families, but may occur without a previous family history.
Our Contact Details
Genetic and Rare Disease Network (GaRDN)
Suite 7, Oasis Lotteries House, 37 Hampden Road
NEDLANDS WA 6009
phone: (08) 9485 8999